Data Stewardship

The responsible management of data throughout its lifecycle, including decisions about collection, storage, access, sharing, and disposal. In accessibility research, participatory data stewardship involves disabled data contributors in decisions about how their data is used, recognizing that disability data carries unique privacy risks including re-identification, surveillance, and discrimination in employment and healthcare. Good data stewardship practices include transparent documentation of collection methods, meaningful compensation for data contributors, long-term relationships with contributing communities, and mechanisms for contributors to control how their data is shared and used.