Glossary

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Care Partner(also: Care Dyad, Caregiving Relationship)

A term encompassing both the person providing care (caregiver) and the person receiving care (care receiver), emphasizing the collaborative and reciprocal nature of care relationships rather than a one-directional helper-recipient dynamic. The care partner framework recognizes…

Care Staff(also: Care Worker, Direct Care Worker, Personal Care Aide)

Individuals who provide day-to-day personal care and support to residents in care facilities, including assistance with eating, bathing, dressing, toileting, and mobility. Care staff are distinct from medical professionals such as nurses and doctors; they typically receive basic…

Care Web(also: Care Web in Practice)

A care web is a relational network of overlapping, often reciprocal support that sustains a disabled person's participation in everyday life, described by Leah Lakshmi Piepzna-Samarasinha in 'Care Work: Dreaming Disability Justice'. Rather than locating support in a single paid…

Caregiver(also: Family Caregiver, Informal Caregiver, Carer)

A person who provides unpaid assistance with daily activities, emotional support, and care coordination for a family member, friend, or neighbor who has a disability, chronic illness, or age-related needs. Caregivers face significant physical, emotional, financial, and time…

Caregiver Burden(also: Carer Burden, Caregiver Stress)

Caregiver burden refers to the physical, emotional, social, and financial strain experienced by individuals who provide ongoing care to a family member or partner with a disability, chronic illness, or age-related condition such as dementia. Caregivers often experience…

Caregiver Interdependence(also: Care Dependency, Caregiver Reliance)

The mutual reliance between a disabled person and their caregivers, encompassing physical assistance, emotional support, and technological mediation. In accessibility contexts, caregiver interdependence highlights that many disabled people rely on caregivers not just for…

Caregiving(also: Carer, Caregiver, Care Partner)

The unpaid or paid work of supporting another person with daily living, health management, social participation, or emotional needs, often in the context of disability, chronic illness, or ageing. In accessibility research, caregiving is usually treated as an interdependent…

Co-Regulation(also: Coregulation)

Co-regulation is the process by which one person helps another manage their emotional or physiological state, through presence, calming behaviours, modelling coping strategies, or environmental adjustment. It is well established in developmental psychology (parent helping a…

Collaborative Memory(also: Distributed Cognition, Shared Memory)

The process by which memory tasks and cognitive load are distributed across multiple people, typically within families or close social groups. In the context of disability and caregiving, collaborative memory refers to how family members collectively manage the memory needs of a…

Collaborative Tracking(also: Collaborative Self-Tracking)

Collaborative tracking is the practice of multiple people - typically a person with a health condition and their caregivers or allies - contributing to and reviewing shared health or behaviour data. It extends personal informatics from individual self-knowledge into…

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